This new life I live sick and missing something that never existed a love affair that lived in my head. Will never be in love I feel. Never be the heartbeat of a man like you were for me. i can’t see it happening. Confined to just this but tonight as I close my eyes I remember what it was in my heart. How I clung to the moments that we did have. the times that we did share and my heartbeat changes. I hate that you still have this control over me. Your suppossed to come to see me the man that controlled my pulse. The only man that i ever connected with in any way. But i guess you loved all others. i was never exactly good eough for you. It didn.t break me.. It just made me blieve that love did exist because even today how I have felt for yu makes me believe in what love can be. As i sit here in the bed that keeps me daily in rememrance of the fact that a brain tumor has changed my life the course of my understanding i think of you. It’s ione of those things that you have to just sdmit happen to me. i looved you. you never loved e but the love I felt for you changed me. Your suppossed to come visit in these days.. I wonder if you will make it to me.. see me in all the ugly o feel. Sick not able to live behind the long hair i use to have. Increasingly overweight from the steroids. All my fears wrapped into one situation. At one time you told me that I lived hehind my long curly hair that the person I was seemed consumed in this. As I live through this I think of yu daily the person that I was you knew. I actually did love you the broken man you really were. I guess in the black and white of it you taught me more aabout myself than i ever knew. As I fight this cancer.. I think of you daily.. Not because of the feelings I had for you but because of the care you really did give to me. You looked at me tht day so long ago now and you said omething ws wrong. It was one of the reasons that I went to the doctor… yet you know me.. my intution strong. yet I have missed you, kissed the feeling of liethat you did give me. You were never good for me. Yet youwere weren’t bad for me either. I wait for you because whent he days end love of any kind is a gift ad I am not afraid t admit that my love for you ran deep, it was the only love I feel nI eer truly felt. i did love a woman for many years trying to qwell the issues i had with my mother an I will never take away from that love. It was a love that took a lot of years in my life and the experience was just as real as the one that I felt for you. It lasted longer was never one sided. It shaped alot of the person that I have become but I can’t compare it to the depth of feeling I felt for you. You showed me tht to connect with a person on so many levels is possible. The thing we sared was a deep intricate friendship that lost it’s footing went to far. It still touches parts of me I wished it couldn’t. All the people that have come to visit me, all the people who love me I still wait to see your face. A face I don’t even find that handsome. A man that I wouldn’t even be proud to say that I know. Yet you changed me. In the midst of a lifetime that I am not exactly proud to even say that I know. I am not going to lie you impacted me.. The person that I am today ia majorly do to the time that we spent together. Whether it was perfect or not we connected. We were in thd least the best of friends. The last time we saw each other before my life drastically changed you were the one that noticed that something about me had changed. You loved me in your way in the best way you could, in the best way that someone like you could love me. In the honesty of this moment I should have listened sooner, maybe they would have caught it sooner but thank you to whatever you were to me because not much later I did listen and I am still here fighting. I am still giving faith to my God. Sometimes the things that we do experience is just to make us stronger and you made me stronger. the hurt, the cfonnection, the everything. The things that I did feel let me understand what love did feel like. I did love you. As I rememeber th pain of seeing you love other woman instead of the one that held you down, the one that gave without trepidation, the one who gave heart soul and body, it hurt yet it made me a fighter prepared me for these days here. This is the fight of my life, this is the cause of my existence to make it through this. So I pray, I keep my mind occupied, I try to believe that it is all for a testimony that God has set out in front of me. All the things that I worried about seems to be fading in the illness. It has built me to be a better version of myself. In my illness I see us for what we really were for what we were not and a part of me doesn’t want to see anything more than another past so that I can paint another future. Yet love is something that truly may be missed on a life that I will live so I give my truth regardless of how stupid it makes me look you were the closest thing I got to it other than her and I’m starting to see what you saw when you met her. A woman that didn’t regard me in a way that worthy not of me yet you both were so similar when I look back I see maybe I didn’t love myself the way I should have. Now that I’m here I look to you in a way that I wan’t to be reminded of yhe things you would tell me. Even in the hurt that I felt in loving you, I have to admit that the best love that you did give to me was helping to build this person that is able to wake up every day ad have thea ttitude that will still fight with all she has. I wait for the friend that I do have in you. That is all we were meant to be. I see that now and with that closure in my heart I am able to embrace you. I am able to see the man you truly are. Every woman wants a great love.. I am no different. The truth is I am only this a woman who in her illess is living her greatest fears. I am bigger than I ever was… the only reason I ever did any drug to keep the pounds at ay. God is teaching me the lessons the hard way. I ran from my mother to be here with her daily, lived beyond the vanity of my beautiful long hair to now have one. This is the greatest lesson that I COULD have experienced. See today life is right in my face in a major way. These are things you have told me be the things that we spoke of years ago are here now. I know things of us you never heard or accepted but now I see that you can’t make someone feel or see something that they just don’t so now i just accept you as you are for everything that you are or are not. I had to do it for myself. In the midst of love that is all you can do right. So I will wait for you to arrive as I know you coming to say yur piece to see the woman you told to check that foot out……
Tag Archives: life
I dont really write anymore.. Stop doing that when my words became jumbled when I stopped being heard when I stopped believing I deserved to be heard. I wonder if anyone out there felt the same way.. like a voice that use to speak to them hiding in the back of there head seemed to be silenced. A part of me has been murdered, that voice that would rhyme, that seemed to know how to weave words like intricate needle work. Now I am quiet. the silence is binding. I wonder if this change is the me that is to follow if this is the show I will watch. in the outside world I want to be more than my circumstance but the silence has swallowed me
It’s late and I am in the mood to not sleep, the meds keep it hard to drift off into the late night and the hum of the book I am suppose to be writing highlights the thoughts in my head. Instead Rollbounce plays in the background and I find myself thinking how my thoughts are not the same as they use to be. It’s harder for me to complete thoughts. My clarity of thought is not the same. The tumor that has covered my brain has changed me and I keep thinking has it changed my writing for the better or the worse. I know it has changed the desire in me to write but it’s still their. I am reading more of other people’s work. I am more aggressive in my approach. Or better yet my attitutde is uglier or more aggressive but it takes me to a different place of thought.. the thought or kind of thought that makes me want to know more about progressing the writing further.. who is this writer becoming who will she be. The thing that has not changed is the wanting to write, the wanting to be heard. Now I am thinking of writing the good fight. My auntie sent me a article about th way we need to recycle.. which we should already know but it seems we still don’t. so my idea today is we can at least give it to the homeless guy on the street who is trying to make his dollar ou fo fifteen cents.. that way the responsibility is not ours but we still get the job donewritesometi
This is one is just going to be a free for all. I just don’t understand it… how family and people in general can be so cruel. When I first found out I had a brain tumor I was pretty much aware of it… something just didn’t seem right. I was telling my toes to move and they wouldn’t move.. I had had a limb for more than three years and I know what your saying that’s a long time.. but I had been homeless I had been a world of turmoil I had been alone, and parts of me just felt like it didn’t matter like it was my penace for all the wrong I had done to myself to those around me. I had moved to a different place I was at peace finally I had made amends with my life… So It didn’t scare me… but when I just got tired of falling… I had gotten tired of the life I was living and I was forced to move back home… Back to good ole Cali… I had no job and God stopped me dead in my tracks and before long I was in a doctors office and I had been told that my gift of discernment and my close quarters with faith and God where in deed true… I had a tumor. I didn;t take it so hard… After all I had a feeling… I told one of my besties and she just didn’t believe me nad told me to hush up… but as I my birthday rolled around.. I knew something was wrong… I told my sister who at the time seemed to be the best friend I could have. Since then she has turned into the puppet master and now all of a sudden people are acting like jerks are little cupcakes you eat for breakfast that give you no muffin tops and you can eat daily without gaining a pound and we know this i not true… the tumor is a glioma malignant but slow growing they say… Thank goodness I am not scared or other eise I would be falling over because these family people are arguing over medical power of whatever… and all I can think about is the fact that I am so tired of something happening,,, I just want to sit down. Once you stop making the bad decisions you hope the decisions that you do make are just better than the last.
Now I spend my days going to CVS like really they know my name like it’s a bar… I go to radiation, I take my medicine.. these are my days… I think aboaut what I am going to where to radiation but they have me on Steroids and they have blown me up to the place of uncomfortable you wouldn’t believe but I still feel alive and happy on most days then my sister my niece my so called family come and they say these things…. I want to blast her out my niece but her business on the web, want to hurt her the way she hurt me and then I realize the life I have lived and where I am now… gives me no way to actually do that… that is not the person I want to be,.. who has a tumor and is a worse person… who goes through the things I have gone through and actually acts like that. Then It makes you start to think about the difference between good people and bad people…..
It’s not like it’s an untold story that most loves stories don’t end like the movies. Perfect and simple, pretty untold litle memories where it just happens to be we end up happy. Wouldn’t you rather it messy and ready to just read like manic moments of insanity and then then the parts where arms are held around me, my beat pulsating into rhythmns. I am in love, and in love knows no time. Arrives at your door messy and unshaven but ready. When possible isn’t that moment at the end with the perfect song playing, and we are in love. That wouldn’t be any fun. No story to tell there to neat.. I rather it the other way where I just touch you and I am musty in the sweat of our angst. The dirty angst of what we didn’t do, what we didn’t say. . We kept being wrong, touching where we shouldn’t, laying where we can’t get up to find ourselves in reality. Our reality is lost to this moment. You have come to this place with love in your movement but not in your words and why… I want to ask but answers are spoken in heart rhythmns as I have said. Our language is not of the ears of others. I want to be angry but all I can be.. is who God wants me to be, this woman in this place with situation at this time, with these words to hushed and whispered and screamed and penetrated and………..
Today has been a day that began with a little lesss stress, or maybe a little more hope. Which it is.. is hard to tell, but it felt different.. LEARNING THAT YOUR ILL ALWAYS HAS IT EFFECTS… YET i USE TO FANCY MYSELF A WRITER. Someone who is well apt with words and emotional overtures.. Yet I haven’t been abl to find any words that I can train together or even manipulate to sound like good anything. I wondered if it was because to truly write I would have to be so honest… But I don’;t know exactly what is honest are not at this point. Thats when I see a post… ” my health is not imporoving… I realie at this moment that is not SOMETHING THAT TROUBLES ME.. Getting better.. then I see another post, the dangers of cancer, the pain of cancer, my family and cancer.. i am not stirred.. I am not moved… while I have this tumor.. am downing steroids after waiting four months for treatment after my state aid didn’tt seem to work ir self out… I realized that every experience of being ill is not always an emotional experience and that was my style of writing.. I am not feeling soemotional.. I am feeling like I wish I had more oney.. I am feeling like I wish I could center my thoughts like I use to.. I am feeling like I would sleep more… I wish my radiatioin treatment lasted longer everyday… because my technician is changing my opinions of my predjuice of people like him an the table is cold… and my body is usually so hot…. during these few minutes everyday I feel like I am working toward getting better. i am feeling like Steroids are a devil drug because they have caused me to gain 40 pounds in 4 months and I am so uncomfortable….. yet none of things make me feel like writing, none of things make me feel like me, but yet I don;t feel so detached from myself I pity anything about my experience about these moments in my life. I have a tumor.. I can’t wait and I don’t feel all that emotional… I can’t wait begin chemotherapy.. I am ready to move forward.. but I am not ready to cry.. Then it’s back to what story do I tell… Do I tell the story of a girl who escapes into a world of desire… a place she desires of a life after the struggle… or do I tell the story of the event, of the days, of the moments, of the cold slabs, and sweet technicians that make bad days seem like retreats for healing… how God brought me back to a place i would have have seen as painful to find myself in fits full of laughter and introspection… Yet I suppose like all things…. the layers of situations are never quite as simple as they seem and every story is mostly likely buried way beneath the surface and are never what you think the story truly is…
Most of my answers are never quite as neat as I want them o be… and are left unanswered.. but I do know that this show…. Masters of SEX was addicting and mouth watering and heart snagging all at once….
When I walked in to meet my Radiation Oncologist… I saw a nice Asian doctor with a kind face and news that meant healing. The third question on his list of get to knows me, was the question that I am most ashamed to answer in these days. Having a brain tumor gives you a way out of most things but it still will get you a look of dismay and down right disgust when the answer is in the affirmative to… ” Do you smoke cigarettes?” when you answer this question yes after quiting some other things that carry far more negative conotation…. you know you should really be ashamed. I nodded and I told him that I had been working on quiting and the truth is.. I have…. I have successfully taken a pack a day diet to a three a day habit.. Yet as of Monday Morning my treatment will begin and I am no longer going to be a member of the smoking class. And I damn proud of it…….
Sometimes I crave the inhale of the nicotine, but it quickly subsides…
I am yelling… Back the hell up nicotine… that MONKEY is no lo joke. I mean I have heard of people doing some wild things, for drugs and sex.. and oh the hoarders that I see on tv…. however why none of those things seem to be as bad a cigertte, maybe its beause now hat I do have a cancer to actually give youself this illness with these sticks of relief give me this feeling os something really makes me feel less. Makes me feel like my faith in God is weak… Even having a glass of wine every now and them seems like nothing big or bad to to do.. But in smoking you can kill not just yourself but the people around as you as well.
This long goodbye has been rewardinf and also it has given me something that I can say that I conquered, Having some control in a controlless situation always does make one feel a little better. Goodbye to you Newport… I might miss you but I will never tell you, will never give you the satisfaction,. I don;t miss you after meals anymore, and with this steroid they are giving me you would think that i did, but its slowly faded away. So sayonara bitch made cancer stick